ADCY5.org is dedicated to those living with Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD), by supporting affected families, clinicians providing care, and researchers studying ADCY5.

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Support Our Work

Support our work through a donation or sharing your experience with Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD).

 
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Genetic Testing

Genetic testing is available. If symptoms sound familiar to you, get the form you need to get testing.

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Newly Diagnosed?

Learn more about the disease, connect with other families, support research working toward treatment.

 
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Get Involved In Research

A Natural History Study has commenced. Get involved by enrolling your family.

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Community

Our community is made up of patients, their families and caregivers, clinicians, and researchers.

 
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Research

ADCY5.org supports research happening now. Share your journey, answer surveys, provide medical records so more can be learned about the disease.

 
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Resources

There are resources available for you as you navigate Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD) and rare disease.

“Receiving a diagnosis has allowed us to connect with the small, but strong, community around Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD), and have a better sense of where to focus our efforts.”

– Family of Maya, age 8