ADCY5.org is dedicated to those living with Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD), by supporting affected families, clinicians providing care, and researchers studying ADCY5.

donate_offwhite.png

Support Our Work

Support our work through a donation or sharing your experience with Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD).

Donate
 
testing_offwhite.png

Genetic Testing

Genetic testing is available. If symptoms sound familiar to you, get the form you need to get testing.

Learn More
registry_offwhite.png

Newly Diagnosed?

Learn more about the disease, connect with other families, support research working toward treatment.

Join Our Registry
 
research_offwhite.png

Get Involved In Research

A Natural History Study has commenced. Get involved by enrolling your family.

Get Started
community2.png

Community

Our community is made up of patients, their families and caregivers, clinicians, and researchers.

 
research2.png

Research

ADCY5.org supports research happening now. Share your journey, answer surveys, provide medical records so more can be learned about the disease.

 
resources.png

Resources

There are resources available for you as you navigate Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD) and rare disease.

“Receiving a diagnosis has allowed us to connect with the small, but strong, community around Adenylyl cyclase 5 (ADCY5)‐related movement disorder (ADCY5‐RMD), and have a better sense of where to focus our efforts.”

– Family of Maya, age 8