Clinicians
ADCY5 Clinicians
These clinicians have seen and provided care to a patient affected by ADCY5-movement disorder syndrome. We are currently accepting names of more clinicians from families in our community through our Patient Clinician form on this website.
Australia Brazil Canada France Germany Netherlands United Kingdom United States
Australia
Dr Eunice Chan, MD
Paediatric Neurologist
Royal Children’s Hospital Melbourne Movement disorder clinic
Contact information:
movementdisorders@rch.org.au
Dr. Victor Fung, MD
Adult Neurologist
The Specialist Medical Centre
Westmead New South Wales
Contact information:
https://www.healthshare.com.au/profile/professional/142244-aprof-victor-fung/#overview
Dr. Shekeeb Mohammad, MD
Paediatric Neurologist
Westmead Children’s Hospital
New South Wales
Contact information:
shekeeb.mohammad@health.nsw.gov.au
Brazil
Dr. Andre Pessoa, MD
Hospital Ifantil Albert Sabin
Fortaleza, Brazil
Contact information: https://neurogenetics.com.br/team-member/dr-andre-pessoa/
Dra. Patricia Dumke da Silva Möller, MD
Versi Clínica, Centro Clínico Biocenter
Brasília, Brazil
Contact information:
https://www.patriciamoller.com.br/
Dr. Patricia da Silva Sousa, MD
Children's Hospital Doctor Odorico Amaral de Matos
São Luis, Brazil
Contact information: https://www.escavador.com/sobre/1463668/patricia-da-silva-sousa-carvalho
Canada
Dr. Inge Meijer, MD
Hospital Sainte-Justine
Montréal, QC, Canada
Contact information: https://dystoniacanada.org/inge-meijer-m-d-ph-d-frcp-c
Dr. Tamara Pringsheim, MD
University of Calgary
Calgary, Canada
Contact information: https://contacts.ucalgary.ca/info/chs/profiles/1-4838725
France
Dr. Emmanuel Flamond-Roze, MD
Paris Brain Institute
Paris, France
Contact information: https://www.movit.paris/team-pi/emmanuel-flamand-roze
Germany
Prof. Dr. Andreas Merkenschlager, MD
University of Leipzig
Leipzig, Saxony, Germany
Contact information:
https://www.uniklinikum-leipzig.de/einrichtungen/kinderklinik/Seiten/neuropaediatrie.aspx
Netherlands
Dr. Rick Brandsma, MD
University Medical Center Utrecht
Utrecht, Netherlands
Contact information: https://www.umcutrecht.nl/nl/zorgverleners/brandsma-r-rick
Dr. Jolanda Schieving, MD
Radboud University Medical Center
Nijmegen, Netherlands
Contact information: https://www.radboudumc.nl/en/news/2021/a-personal-glimpse-of-jolanda-schieving
Dr. Laura van de Pol, MD
Academic Medical Center
Amsterdam, Netherlands
Contact information: https://www.vumc.nl/zorg/uw-artsen-en-zorgverleners/zorgverlener/l.m.-laura-van-de-pol.htm
United Kingdom
Dr. Dan Lumsden, UK, MD
Kings College London
London, England
Contact information: https://kclpure.kcl.ac.uk/portal/en/persons/dan-lumsden(f84ae62b-b8af-4b9a-864b-ca8109c19031).html
United States of America
Dr. Galen Breningstal, MD
Gilette Children’s
St. Paul, Minnesota
Contact information:
https://www.gillettechildrens.org/care-team/galen-breningstall-md-pediatric-neurologist
Dr. Tim Feyma, MD
Gillettes Children’s Hospital and Clinics
St. Paul, Minnesota
Contact information: https://www.gillettechildrens.org/care-team/timothy-feyma-md-pediatric-neurologist
Dr. Jennifer Friedman, MD
Rady Children’s Hospital/ UC San Diego
San Diego, California
Contact information: https://www.rchsd.org/doctors/jennifer-friedman-md/
Dr. Naomi Lubarr, MD
Paediatric Neurologist
Mount Sinai Beth Israel & Hakensack University Medical Center
Contact information:
https://www.linkedin.com/in/naomi-lubarr-7649a09b/
Dr. Michael Okun, MD
University of Florida
Gainesville, FL
Contact information: https://neurology.ufl.edu/profile/okun-michael/
Dr. Laura Tochen, MD
Children’s National Hospital
Washington DC
Contact information: https://childrensnational.org/visit/find-a-provider/laura-tochen
Dr. Kara Wyant, MD
University of Michigan
Ann Arbor, Michigan
Contact information: https://medicine.umich.edu/dept/neurology/kara-j-wyant-md
Newly Diagnosed?
The most important thing our rare ADCY5‐related movement disorder (ADCY5‐RMD) community can do is come together to share information and build knowledge about this disorder, getting us closer to treatments.